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African American Albino Shares Her Life - Documentary

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Join us for an intimate look into the life of Charise Johnson, a vibrant young African-American woman with a 10-year-old son and a busy life. When you first see her you can tell right away she's different. Charise has Albinism. And when you get to know her you will discover she really is different and there's nothing wrong with that. In 1974, when Charise was born, a childhood free of major health problems is not what life had in store for her. At the age of nine she was diagnosed with Ulcerative Colitis. By the time Charise became an adult, she'd had several surgeries, a temporary ostomy bag, and ultimately had her large intestines removed entirely; after which she developed Crohn's disease. Arthritis has left her in need of knee replacements and a lifetime of damage to her skin from the sun has lead to re-occurring skin cancers. Charise, being blessed with a mature and supportive family had incredible support throughout her developmental years. They are what kept her grounded when the social pains far outweighed her physical ills. There was no shortage of bullies and teasers in Charise's life. Even as an adult she can't escape the verbal abuse of strangers with statements like "what are you?". In "Charise: A Portrait of an African American with Albinism", Charise shares with us, her pains and her joys. She talks about her family life and what it is like having Albinism from medical, social and personal perspectives. Directed by: Tressa Sanders For more information about the documentary, please visit: www.myalbinism.com www. jabafilms.com

Channel: Entertainment
Uploaded: December 31, 1969 at 4:59 pm
Author: IjabaFilms

Length: 02:37
Rating: 4.8955226
Views: 131635

Tags: bully  albino  albinism  black  african  pigment  genes  sunburn  skin  cancer  colitis  ulcerative  ostomy  ocular  vision  blind  color  race  ethnic  ethnicity  fight  argue  family  relationships  values  love  documentary  genetics  photography  dvx100  independent  film  festival  Tampa  Florida  Plant  High  School  Panthers  loyal  affection  siblings  brother  mother  father  dad  mom  beach  movie  kid  children  home  video  charise  women  woman  girl  lady  son  child  african-american  beauty  beautiful  pretty  self-esteem  genetic-disorder  

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Video Comments

NeoJinn (December 31, 1969 at 4:59 pm)
yah guess you're right, sorry :/
IjabaFilms (December 31, 1969 at 4:59 pm)
I'm trying to make you aware you are on the wrong track. You simply can't make that assumption because these women you are seeing are artificially altering their eyebrows. Just like people think Charie's hair is straight but she's wearing a wig and her real hair is very coarse. My entire family has thick eyebrows and we don't alter them and we don't look anything close to Indian.
NeoJinn (December 31, 1969 at 4:59 pm)
I meant it more in an inquisitive way. not trying to refer to beauty :/ the girls in the vids I've seen made it feel like that was a sort of common genetic predisposition for the way alot of Africans' eyebrows grow. I just thought it was interesting and thought It might've had a relation to how africans' eyebrows often blend in with their own pigment. I think africans with thicker eyebrows begin to look indian :/ Just trying to determine what makes races look a certain way. anyway nice vid :)
IjabaFilms (December 31, 1969 at 4:59 pm)
Seriously, you shouldn't assume that black women aren't affected by ideals about beauty. Our eyebrows aren't thin unless we pluck/wax/shave them just like anyone else. Also Charise has eyebrows but they are white. So if you are judging by people with Albinism, you are seeing eyebrows that are white/blonde and hard to see unless you are up close.
NeoJinn (December 31, 1969 at 4:59 pm)
funny i didn't notice how thin most african girls' eyebrows were until I saw vids on albino ones. obviously not all.
Allnatural7 (December 31, 1969 at 4:59 pm)
She is pretty.
ilovealexkarev (December 31, 1969 at 4:59 pm)
youre not ugly at all! and your family is boss
waterpuck (December 31, 1969 at 4:59 pm)
I'm a female African American albino, and I identify with SO much of what was in this preview. I will encourage everyone who says they are my friends, but don't really UNDERSTAND to see this. Thanks for being strong enough to make this. I think it'll help others understand specifically what african americans with albinism go through.
Shawnte24 (December 31, 1969 at 4:59 pm)
Anxiously awaiting for this....
IjabaFilms (December 31, 1969 at 4:59 pm)
Youtube won't allow links in comments but you can do a search for "my white friend"

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